Romanian Minister of Health Alexandru Rogobete has signed a Memorandum of understanding between the Ministry of Health, Carol Davila University of Medicine and Pharmacy, the Romanian Association of International Drug Manufacturers (ARPIM) and rare disease patient associations.
The agreement aims to strengthen cooperation and identify practical solutions to improve the lives of people living with rare diseases. The partnership sets out several priorities, including faster access to innovative treatments, the development of integrated medical services and continuity of care, regardless of patients’ age.
The main objectives of the Memorandum include:
- Accelerating access to innovative treatments. The Ministry of Health aims to improve access to modern therapies and encourage innovation in rare disease treatment, helping patients receive appropriate care as quickly as possible.
- Supporting multidisciplinary medical teams. Rare diseases often require cooperation between several medical specialists. The partners will explore mechanisms to recognise, organise and adequately fund multidisciplinary teams.
- Ensuring continuity of care from childhood to adulthood. The transition from paediatric to adult healthcare should ensure uninterrupted access to diagnosis, treatment and monitoring. This requires clear care pathways and specialised centres equipped to support patients through this transition.
- Developing integrated support services. Care for people with rare diseases should extend beyond medical treatment to include rehabilitation, psychological counselling, social support and inclusion, addressing the needs of both patients and their families.
A specific objective is to expand access to innovative medicines. By the end of 2026, the Ministry estimates that six additional innovative medicines for patients with rare diseases will be added to the list of reimbursed medicines.
Signing this Memorandum represents a shared commitment to patients with rare diseases. For me, every patient matters. Our responsibility is to build a health system in which a diagnosis does not mean a lack of prospects, and access to treatment and care does not depend on where you live or what stage of life you are at.
Alexandru Rogobete, Minister of Health
The Ministry of Health reaffirmed its commitment to turning cooperation and dialogue with all stakeholders into concrete measures that improve access to healthcare services and treatments for patients across Romania.
